About us
The Ehlers-Danlos Syndrome National Association is a non-profit association founded in Stockholm in 1992 by Britta Berglund, now former president.

The aim of the association is to seek information about Ehlers-Danlos Syndrome (EDS), to spread this information to the general public and to nursing staff of all categories, to give the opportunity for members to support each other, and to support research. Member meetings are arranged in different parts of the country.

The newsletter EDS-Bladet is issued in May and November.

The association has taken the initiative to a scientific council and the establishment of a foundation.

As of May 2010 the association has 537 members.